World Down Syndrome Day (WDSD) is celebrated annually on March 21, a date selected to represent the triplication (trisomy) of the 21st chromosome that causes Down syndrome. With this annual day approaching the Thompson Nicola Ups and Downs Society (TNUDS), along with the entire global community of Down Syndrome Organizations, individuals and families with Down syndrome are again raising awareness of Down syndrome.

The theme for WDSD in 2026, is “Together Against Loneliness”. Our campaign focuses on combating the high rates of loneliness experienced by people with intellectual disabilities. We advocate for real inclusion through friendships, and meaningful connections to improve the health and happiness of individuals with Down syndrome so they feel like they belong and are valued. Isolation from friends and community can be a reduced or eliminated by various meaningful relationships in schools, workplaces, organizations and community events.

Isolation results in loneliness which is a serious problem. Everyone feels lonely sometimes, but for many people with Down syndrome and other intellectual disabilities, loneliness can be a more common and painful experience. People can feel lonely even when surrounded by others if they are not truly connected. One study from Australia found that 39% of people with intellectual disabilities often feel lonely, compared to 14% of people without disabilities. Loneliness is not just a sad feeling, it is bad for our health and happiness. It can make people feel anxious or depressed which can result in harm to physical health.

Loneliness happens when people are not supported to build and maintain meaningful connections with other people. For people with Down syndrome it is not always easy to create, strengthen, and maintain relationships. Sometimes people with Down syndrome can be in the same room as others but still feel lonely. Being present is not the same as being included. Loneliness is also caused by stigma and discrimination and can happen when people are left out of schools, workplaces, and community life.

The answer is ‘real inclusion’! It’s about having good friendships and relationships. It’s the feeling of being valued and knowing you belong. This is a problem we can solve, and ‘Together Against Loneliness’ is our call to action. We want to talk about the problem of loneliness and how we help people feel connected and that they belong.

There are some actions that help break the cycle of isolation. Make schools, jobs, community life and all spaces welcoming and inviting, not by just being there, but by taking part. Meaningful relationships with family, friends and partners that are strong and supportive.

This March, and every other month, be aware of those in your community with Down syndrome or other intellectual disabilities. Invite someone to join a conversation, a game, or a group. Run inclusive clubs, sports, and groups that help people make connections. Families can encourage members to speak up for themselves. Lead advocacy campaigns and give self-advocates and families a platform to speak up. Connect with other families to build a strong community and advocate for better services. As an individual or a community organization, create opportunities for connection.

Thank you all for your support and happy World Down Syndrome Day. For more information check out the Thompson Nicola Ups and Downs Society Facebook or email [email protected]

Dave Ralph is the President of the Thompson Nicola Ups and Downs Society